If You Have Lyme Disease, Put Your Case on the Map
The Lyme Disease Map Project at www.lymediseasemap.org is testing a new paradigm for public health education using Google Maps and social networking.
If you or someone you know has had Lyme Disease and wish to share your story to help promote awareness of Lyme Disease, go to www.lymediseasemap.org which contains a map that enables people to share their story of Lyme Disease by adding a “pin point” of where they contracted Lyme Disease to the map.
Just complete a brief online form and your case of Lyme Disease will be added to the map. Participation is completely voluntary.
December 19th, 2009 at 5:38 pm
THANK YOU so much for doing this
perhaps “they” will change their minds about just how widespread Lyme is when they see the map!
January 10th, 2010 at 3:01 am
Recently, I went to my Dr. with numerous complaints such as, constant aches over my entire body, constant fatigue, memory loss, and degrading vision, etc.
He sent me for blood tests etc. and I was found to have hypertension and cholesterol problems.. fine
But, upon a follow up visit, I asked if those things were related to the body aches, fatigue, etc. and I also told him something I had forgot to mention at the first visit.
About 7 years ago or more (maybe 9 years) I was had a tic on my left, inner, upper thigh. I had removed it and noticed a red ring like rash had developed afterward.
I had no knowledge of Lyme disease back then so ignored it, but I remember the rash and it concerned me a bit back then.
He sent me to retake all the lab tests, and this time there was much more blood work taken and he sent me for a brain MRI as well.
A few days later, I went back to see him about the results and was told I have Lyme Disease.
The effects of it, being untreated so many years may have taken quite a toll on me physically and nuorologically. (hence the memory loss & degrading vision)
I am just finishing up my first round of doxicycline (antibiotic) and then I will be going at the end of Jan. 2010 to get all the tests done again to see if it had any effect.
During the second week of the antibiotic, I felt pretty good for 2-3 days (better than the past few years) But, after that, and since… I feel worse than ever with the aches and pains. My memory seems to be getting progressively worse, as is my vision.
I still remain in a constant battle with fatigue and insomnia.
The body aches are often so bad, I cannot sit, nor stand (or move around) for long periods of time. I am just constantly uncomfortable and sore all over.
I have also noticed, that in areas I have had past injuries… the pain is really bad (like someone sticking a knife into the area and wiggling it around all day)
These areas include a finger I practically severed many years ago as a teen, my left knee where I tore all the miniscus years ago on a job and had surgery, various areas in my back where I have tiny bone fragments floating around from a fall years ago, and syatic I have suffered from for many years, as well as my right stabilizer muscle for my shoulder blade which I tore about 10-11 years ago.
Beside that pain everyday, I deal with really deep, joint & muscle pains all over.
There are many days where I am barely even functional, due to the pain, despite taking aspirins and pain relief creams, etc.
It is an extremely annoying and dibilitating illness.
January 14th, 2010 at 4:22 pm
Noticeable symptoms began March 2008. Initially diagnosed as mono, but doctors could not explain additional symptoms, i.e. chest pain, seizure-like episodes, recurrent UTIs, nausea, complete loss of appetite, pimple-like rash in hairline, light-headedness, severe arthritis pain in feet, hands & eventually hips and severe muscle cramping. Diagnosis of erythromelalgia causing redness and burning in the hands and feet. Also diagnosed with a mildly dilated descending aorta. Arthritis and muscle cramping migrate and symptoms worsen on antibiotics due to herxheimers. Tested CDC positive in September 2009 through LabCorp and CDC positive two more times since then through LabCorp. IDSA physician said he didn’t trust LabCorp and would not treat based on LabCorp results. Under treatment now with a Lyme Literate medical doctor. Do not recall a tick bite in 2009 but was bitten several times as a child.
January 14th, 2010 at 4:24 pm
Addendum to previous message. This is in Utah. Had not visited any other states during the previous year. Tick bites occurred in Utah and Idaho.
September 21st, 2010 at 12:43 pm
Hi, I´ve never had Lyme Disease, but I know a friend that had it, last year, and she told sometinhg about it, that I didn´t understood, so this post helped me found, information and stories, of so many people, I´m going send this website to my friedn, so she can read it too. Thanks.
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