Conditions Added to Compassionate Allowance List

SSA announced the addition of three conditions to its Compassionate Allowance (CAL) list on September 5. There are now 228 conditions that qualify for expedited processing through the CAL program.

The three new Compassionate Allowance conditions are:

Infantile and childhood onset forms of Childhood Ataxia with Central Nervous System Hypomyelination (CACH), also known as Vanishing White Matter Disease: a congenital, inherited disorder that creates a variety of neurological symptoms.

Congenital Myotonic Dystrophy: a form of muscular dystrophy that tends to present in adulthood, leading to gross and fine motor limitations and, often, to cognitive impairments.

Kleefstra Syndrome: a disorder involving deletion or mutation of the EHMT1 gene. Symptoms involve multiple body systems and are generally apparent at birth or in infancy.

According to a recent GAO report, a total of approximately 500,000 disability claims were approved through the CAL process in Fiscal Years 2012-2016. CAL claims are approximately 3% of the total claims processed each year.

To review the list of conditions considered for compassionate allowances, please click visit https://www.ssa.gov/compassionateallowances/conditions.htm.